Today is Monday and we have been here for almost a week. It seems like much, much longer, however we are super excited for the week coming up.
Emma finished 3 days and six treatments of radiation. I'll post the pics later. It looked barbaric, but she was a trooper and did them all without complaining. She watched movies while she was getting zapped (Bugs Life, Pocohantas and Wizard of Oz) and she smelled like she had done some intense tanning under some super strong bulbs when she was finished.
She's now getting some chemo that drips into her for four hours each day. The chemo wants to escape from her skin so she has to take three baths a day and wipe off the outer layer of her skin so it doesn't get rashes or infection. After each bath, her bed linens have to be changed and she can't put on the same clothes without them being washed. We're going through lots of towels and sheets, but I think she enjoys soaking in the tub.
Everything is going according to schedule and so tomorrow and Wednesday we will have more chemo with Thursday as a break. Ty and Jeff will be coming down on Thursday afternoon to have Ty's "stuff" done on Friday (the big Bone Marrow Transplant Birthday). I'm sure everything will be fine, but I can't help thinking of Ty in the operating room. He is so one of my favorite children, and I really don't want him to have to go through this. I'll try not to think about it or I'm afraid I might have to be medicated myself.
I'll take Ty home and stay for the weekend. I can't wait! Heidi, my sister in law will be at my home this week playing mom to my children. Unfortunately all of these substitute moms are spoiling my children, and I'm pretty sure they won't want the real one back. They actually cook and clean like a bonafide mom should do.
Emma feels good so I feel good. Thanks for all of your prayers. Keep them coming, especially on Friday.
-Lana
Ps. Guess who's sleepin' in Room 4421?
6 comments:
wahoo!! you got the room you wanted! apparently some more discharges happened! hope everything is still going well. We're praying for you guys! love you!!
It was SOO good to se you and sweet Emma today. She looks great! You...not so much -- get dressed for the day, already! Just playing with you. Thanks for the visit. I miss you. I came home and told Emily (Emily George) about my visit with Emma and she is now all excited with lots of plans for what she can send to cheer Emma up and keep her occupied. Maybe you could soak in the tub while she is busy...Love you!
Ty and Emma will do perfectly! You'll see! And yay for getting the room you wanted!!!! We love and miss you guys and pray for you all daily.
That is great Lana that you all are doing well. Emma is truly a hero! Love you! We will all be praying and fasting on Friday for you all.
Marianne
So glad you get that room, a good nights sleep (well, as good as you can get on a faux leather couch anyways!) will do you good all around!
So glad you get to come home for a few days. The RS is bringing dinners on Fridays and Sundays for awhile so you won't have to worry about any of that bonafide mom stuff other than loving on your kiddos!
Give Emma a big hug and tell her she is amazing! Can't wait to hear how everything goes on Friday, everything well be great!
Hey I hope you don't mind I found your blog. I'm glad you got 4421. :)
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